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fridawrites

I hate gravel I hate gravel I hate gravel. I had a high gravel day today. I also do a lot of the nonparticipatory watching, even pre-scooter since I couldn't stand then. But it is so much nicer than being stuck inside, despite just sitting sometimes.

And anyone who makes assumptions about people like us whose abilities are dynamic rather than static should ride around in gravel for a day--no one would do that on purpose if they didn't have to. No one. It's awful.

No one made stereotype-y comments to me today, maybe I had my bitchy stop staring expression on too much. People kept forcing me to stop by walking in front of me--and I got stuck in the gravel every time I stopped! I needed to keep my momentum.

Whoever puts gravel down should be made to clean it up piece by piece or at least ride around in it all day (though they'd still have an easier time than someone with a disability, they'd get the point).

Please don't feel guilty about not doing the PT. I can't do it as much as I should at home, and right now I'm not attending again. We do what we can, and people who don't understand haven't lived it. For me, I've been canceling out nonessential doctor's appointments and focusing on what needs treatment in the short term for my own sanity. It sounds like the neurologist friend would be a good ally for you if you want. Lumbar punctures really scare me, too--I have found that sedatives really do help with some procedures and make me not care what they do to me despite caring very much minutes before. It may be helpful to remember that an awful lot of people get lumbar punctures and problems are rare; in good hands versus someone inexperienced, they'd be even more rare.

fridawrites

I hate gravel I hate gravel I hate gravel. I had a high gravel day today. I also do a lot of the nonparticipatory watching, even pre-scooter since I couldn't stand then. But it is so much nicer than being stuck inside, despite just sitting sometimes.

And anyone who makes assumptions about people like us whose abilities are dynamic rather than static should ride around in gravel for a day--no one would do that on purpose if they didn't have to. No one. It's awful.

No one made stereotype-y comments to me today, maybe I had my bitchy stop staring expression on too much. People kept forcing me to stop by walking in front of me--and I got stuck in the gravel every time I stopped! I needed to keep my momentum.

Whoever puts gravel down should be made to clean it up piece by piece or at least ride around in it all day (though they'd still have an easier time than someone with a disability, they'd get the point).

Please don't feel guilty about not doing the PT. I can't do it as much as I should at home, and right now I'm not attending again. We do what we can, and people who don't understand haven't lived it. For me, I've been canceling out nonessential doctor's appointments and focusing on what needs treatment in the short term for my own sanity. It sounds like the neurologist friend would be a good ally for you if you want. Lumbar punctures really scare me, too--I have found that sedatives really do help with some procedures and make me not care what they do to me despite caring very much minutes before. It may be helpful to remember that an awful lot of people get lumbar punctures and problems are rare; in good hands versus someone inexperienced, they'd be even more rare.

badgermama

Oh i am *so* with you on the gravel hating. Frankly I was closer to tears with trying to get around in it than I have been in a long time! Especially since it seemed so pointless - like, there was no reason for there not to be connecting sidewalks, at least, across the gravel. So exhausting, maddening, unnecessary.

With the lumbar puncture I am just scared it will hurt. It seems like it will go right where I am already in a lot of pain. I am not good at controlling my flinching either. So I picture being yelled at to stay still and just not being able to and them being mad at me.

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